Foundation Fighting Blindness

The T. Boone Pickens Foundation focuses on grants to organizations that operate in its core giving categories (see “About TBPF”). The current partner spotlight is Foundation Fighting Blindness, whose mission is to drive research that will provide preventions, treatments, and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.

Real estate maven Ebby Halliday and legendary entrepreneur Ross Perot participated in the 2009 Dallas Dining in the Dark program.Since its founding in 1971, the Foundation Fighting Blindness has funded innovative research to find preventions, treatments, and cures for inherited retinal degenerative diseases that lead to blindness and affect more than 10 million people in the United States.

Pickens, whose Foundation has supported FFB for the past three years, has firsthand knowledge of its work. He was diagnosed with macular degeneration more than 20 years ago, and his father had the same disease.

“I’ve adapted to my double vision, but I obviously believe in the research being done in this field,” Pickens says. “The more research and general awareness we can get in this area, the better off the more than 10 million afflicted Americans will be.”

One of the ways FFB raises awareness about vision problems and its mission is by hosting “Dining in the Dark” fundraisers in cities across the country. Attendees eat in darkness. All the servers are blind. The diners don't know what they're eating or drinking until it reaches their mouths. And they do it all in cocktail attire. The concept originated at the Blindekuh (Blind Cow) Restaurant in Zurich, Switzerland. Opaque, a restaurant in Los Angeles, brought it to the States. During the dinners, exit signs, windows, and anything else that emits light are covered, ropes and stanchions are set up between tables, and the blind servers are trained to find their way around. The FFB' held its first Dining in the Dark in Orange County in February 2007.

T. Boone and Madeleine Pickens with Foundation Fighting Blindness co-founder Gordon Gund and his wife, Lulie, before the 2009 Dallas Dining in the Dark program.“Mr. Pickens’ generous support of the Foundation Fighting Blindness and leadership in the Dallas community have been instrumental in moving us closer to finding treatments and cures for blinding retinal diseases,” says Bill Schmidt, the Foundation’s chief executive officer.

The FFB is the leading non-governmental funder of retinal degenerative disease research in the world. To date, FFB has raised more than $370 million and has proven to be the driving force in this field. It currently funds 130 research studies at 76 prominent research institutions and eye hospitals worldwide, including 16 dedicated research centers. Foundation-funded studies include cutting-edge research in many areas, such as cell biology, drug delivery, genetics, gene therapy, retinal cell transplantation, retinal implants, and pharmaceutical and nutritional therapies. In addition, FFB established the National Neurovision Research Institute as a non-profit support subsidiary to expedite the translation of fundamental research into clinical trials for inherited retinal degenerative diseases and, ultimately, to accelerate the availability of patient therapies.

For more information, visit www.FightBlindness.org.